Melody has always absolutely loved being a girl (or geel as she used to say it).  The clothes, shoes, dress-up, jewelry, make-up, nail polish and everything pretty.  When Devin started losing his baby teeth Melody was concerned that when she started losing teeth and the Tooth Fairy came to visit her, she would use her wand and change her into a boy.   Once when she was about 2 years old, she happily entertained herself for half the day trying on all of her outfits while everyone else in the family was down with the stomach flu.  Her room looked like a tornado had gone through it and there was nothing left in her dresser!

The week before Melody was diagnosed, we saw some problems, but she had a cold and we thought that she just didn’t feel good. Also, Melody had recently crashed heads with the dog and got a black eye. She would not be feeling good and then later be perfectly normal. She went to school through Thursday the week before diagnosis. On Friday, I thought I had better take her in to make sure she didn’t have an ear or sinus infection. The doctor told me it was just a cold, a virus. I took his word for it. That weekend we stayed at Campland On the Bay in San Diego and went to Sea World. She was not well, but I thought she was just not feeling good still from the cold. Sunday night some of her symptoms we thought were caused by the cold seemed worse but she didn’t seem to have the cold anymore. I took her to a different doctor on Monday.  Melody’s blood pressure was very high. After the doctor examined her and listened to my concerns she asked if Mel had a head injury. I told her about the crash with the dog. The doctor thought Mel may have a cranial bleed, caused by the crash with the dog. The plan was to get the insurance co. to approve an MRI and have that done later in the week. We called Daddy (hysterical) and he came to get us. He called the doctor’s office and asked if they think her brain may be bleeding, shouldn’t we go to an ER? He talked to a different doctor than the one we had seen earlier. This doctor said he would like to examine Melody himself and asked us to come back in the morning. When we went back, this doctor was very concerned and said that if he hadn’t known about the run in with the dog, he would think tumor. He sent us to Children’s Hospital with a list of his findings.  When we got to Children’s, we didn’t have to wait very long. They took Melody to an observation unit with three beds in it. She was given an IV, examined and sent off for a cat scan. The kid next to us had been sent for a cat scan just before Melody and within a half hour of returning to his observation bed, the doctor told his family his scan was clear and he could go home. About an hour after Melody’s scan, I asked the nurse if they had received the results yet. She said no. A Child-Life specialist started hanging around with us and talking and playing with Melody. I asked a few more times if her scan results were in and they were not. Finally, a couple of hours after the scan we were told we needed to move to a private ER room, that the bed Mel was in was needed for someone else. Robbie and I just looked at each other scared, we knew something was up. After moving, the Child-Life specialist told us that the doctor and a social worker needed to speak with us in a conference room. She stayed with Melody. We were scared to death thinking they were going to tell us she needed brain surgery for a cranial bleed. It was worse. The doctor told us that there was a mass on Melody’s brainstem. I can’t explain how we felt. There are no words to really describe it. It’s a feeling so awful you can’t imagine what it’s like unless you’re in the situation. Melody was admitted to the hospital. We were in shock; I don’t think we thought the word cancer until we saw the sign that said we were in the Oncology unit. We would have to wait until morning to talk to the Pediatric Oncologists. The next morning we were again taken to a conference room and told that Melody has a brainstem glioma, surgery is not an option due to the location of the tumor, the tumor had become part the brainstem and that she has a 10% chance of long term survival. That was March 23rd, 2004. From that day forward, forever, our lives will never, ever be the same.